A UK charity driving Digital Health Initiatives for kids and families impacted by Sickle Cell and Thalasseamia.
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Meet these Icons: Stories that might inspire you
Published 3 months ago • 3 min read
Meet these Icons: Stories that might inspire you.🧡
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Hello Reader,
Get ready to be amazed, inspired, empowered- at this point, I am just rhyming- as I share the incredible stories of FIVE individuals who are redefining what it means to live with sickle cell anemia. From the world of sports, media, healthcare, and beyond, these amazing individuals prove that nothing can hold you back.
🤩5 INDIVIDUALS REDEFINING SICKLE CELL ANEMIA.
T-Boz: The Voice of Resilience Meet Tionne Tenese Watkins, better known as T-Boz, the iconic member of TLC. For fifty-four years, T-Boz has battled sickle cell anemia while lighting up the music charts. Her unwavering spirit and passion for music remind us that no matter what challenges we face, our dreams are within reach.
Noel Clarke: Shining Through the Shadows Lights, camera, action! Step into the world of British actor, director, and screenwriter Noel Clarke, who has graced the silver screen for forty-eight years despite living with sickle cell disease. With each role he embodies, Clarke challenges stereotypes and amplifies the voices of those fighting invisible battles.
Tiki Barber: Running the Extra Mile On the football field, Tiki Barber dazzled audiences with his speed and agility. But it's off the field where his true strength shines. Tiki, the former New York Giants running back, uses his platform to spearhead the “Be Sickle Smart” campaign, raising awareness about managing sickle cell disease.
Ramon Reed: The Young Simba Ramon Reed, an American actor and singer, is best known for his roles on hit Disney shows and Broadway productions. Despite living with sickle cell disease, Ramon uses his platform to advocate and educate, inspiring others with his courage and resilience.
Dr. Lakiea Bailey: Healing Hearts, Changing Lives Last but not least, meet Dr. Lakiea Bailey – a real-life superhero in the fight against sickle cell disease! As a hematologist and sickle cell expert, Dr. Bailey is dedicated to helping others live their best lives. Her research and clinical care have not only saved lives but also inspired a new generation of medical warriors.
Your Story Awaits
Reader, I encourage you to embrace your own story. Let the stories of these warriors remind us that our journeys are defined not by our challenges, but by the strength of our spirits and the depth of our dreams. I look forward to hearing your story!
Until next time, remember: the heroes among us are not defined by their battles but by the resilience with which they fight.
1. Why do I think this might interest you? Well, let me share a bit about Bahrain first. Officially known as the Kingdom of Bahrain, it's a beautiful island country nestled in West Asia, right on the shores of the Persian Gulf. Now, here's something fascinating – if Bahrain was approved to treat its first sickle cell disease (SCD) patient with Casgevy, it's a powerful indicator of the growing awareness surrounding SCD. It shows how communities around the world are coming together to support those affected by this condition. Does that mean we should stop talking about it? No!
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2. Worthy of note: "Closing these gaps will mean addressing barriers that patients face during the transition. While the reasons why patients might delay switching weren’t evaluated, they may include gaps in insurance coverage, being uncomfortable about a less familiar environment or doctor, and a lack of understanding about the disease and its treatment. “Interventions to prevent gaps in healthcare between pediatric and adult care should be developed and implemented in transition programs,” the researchers wrote."
🤭🚀Coming Up Next:
Stay tuned for exciting content in the upcoming newsletters! We definitely have more inspiring stories and valuable information to share.
The Power of Stories.🧡 The Force! @Orifunke My grandma is 88 today. A sickle-cell warrior. I hope I am able to get her to tell her story before she eventually leaves this world. 1:14 PM • Apr 7, 2020 1338 Retweets 4522 Likes Read 205 replies Hello Reader, I saw this tweet and it got me thinking about the importance of sharing our experiences. I saw it as a beautiful reminder of the invaluable wisdom and resilience found in stories of those who have lived not just for decades but who has a...
The Importance of Kindness.🧡 Click the image for more Hello Reader, I am also a big believer of being kind to yourself and how it can make it easier to be kind to others, on certain aspect like speaking to yourself and to others with kindness and maybe all aspects. You live with yourself more than anyone and one thing you might be missing in your self care routine is self-kindness. Living with sickle cell anemia (SCA) or caring for someone who does can be incredibly challenging. The physical,...
Empowering Our Warriors: Stories, Resources, and Entertainment.🧡 Click the image for more Hello Reader, This month, we’re shifting our focus to inspiration and empowerment for our sickle cell warriors and their caregivers. Living with sickle cell disease comes with its unique challenges, but it also brings incredible resilience and strength. Here are some heartwarming stories, valuable resources, and a special movie review that highlights the power of community, hope, and perseverance. 1....
